Some pics of Kendra between 0 and 2 weeks old.
Kendra and big brother Branston. Kendra a bit older.
Kendra and Oupa.
Kendra and Branston with Oupa, Ouma, Chelsey and Kayleigh
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This blog was created to be the story of a special needs baby and her journey through life. Now it is the journey of her mother coming to terms with her loss.
About Me
- Kendra's mom
- I am Kendra's mom and I maintain 2 blogs, this profile appearing on both. Kendra was and is my little angel. She was born on 23 April 2005 and lived till 24 March 2006. She had Jacobson Syndrome which means that she had a piece of her 11th chromosome missing. Kendra's World is the blog of her life and thereafter. KIDS support group is the blog of the special needs support group which I joined because of her.
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3 comments:
Hi there we have a 5 year old girl who has jacobsen's syndrome, we are looking to make contact with other families to share experiences of this disorder.If anyone is interested leave a contact source and we will be in touch.Thanks Jon and Caroline parents of lucy
Which specific genes were missing? My son has a deletion of 11q24.3. The doctor is not diagnosing Jacobsen's because he is not missing all that is typical of the syndrome. My son is 4 months old and I am just gathering information.
Hi Anonymous
I am not sure where exactly the break on the chromosome is, I will have to look it up in a file at home somewhere. If you would like to correspond further please send a mail to vannessam@iafrica.com. I would love to hear more about your baby.
Rgds
Vannessa
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