This blog was created to be the story of a special needs baby and her journey through life. Now it is the journey of her mother coming to terms with her loss.
Monday, September 26, 2005
Welcome to Kendra's world
Kendra is my 5 month old daughter who has Jacobsen's syndrome. This is a test post to see what the blog looks like.
2 comments:
Anonymous
said...
hi-if you get this, you can respond to me at loreli38@aol.com. my daughter also has 11q deletion, true jacobsens by breakpoint. We have a group of families in the U.S., gatherings and a newsletter. The Europeans also have a family group. We would love to include you, or help you start one. Let's keep in touch! mom to Hunter, 11q-
hi.... i have a grandaugher 8wks old with jacobsens. my daughter would love to make contact with other families. We live in Australia i think there are only 2 other families here. kll63451@bigpond.net.au
I am Kendra's mom and I maintain 2 blogs, this profile appearing on both. Kendra was and is my little angel. She was born on 23 April 2005 and lived till 24 March 2006. She had Jacobson Syndrome which means that she had a piece of her 11th chromosome missing. Kendra's World is the blog of her life and thereafter. KIDS support group is the blog of the special needs support group which I joined because of her.
2 comments:
hi-if you get this, you can respond to me at loreli38@aol.com. my daughter also has 11q deletion, true jacobsens by breakpoint. We have a group of families in the U.S., gatherings and a newsletter. The Europeans also have a family group. We would love to include you, or help you start one. Let's keep in touch!
mom to Hunter, 11q-
hi.... i have a grandaugher 8wks old with jacobsens. my daughter would love to make contact with other families. We live in Australia i think there are only 2 other families here.
kll63451@bigpond.net.au
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